Security of genetic information is an enormous concern for individuals, and thus an enormous concern facing commercial genetic enterprises.Â I was recently having a conversation with someone about the security of genetic and personal information at companies such as 23andMe and Navigenics, and I pointed out that the very livelihood of these organizations depends on their ability to secure information.Â A single security breach could potentially drive away future customers.
On that topic, Ryan Calo, a residential fellow at Stanford Law School’s Center for Internet & Society writes about a panel discussion held at the law school (pdf poster here):
“With a credit card and a saliva sample, consumers can now unlock the secrets carried in their DNA. Consumer genomics offers direct access to one’s genetic code, plus interpretations of health risks, family lineage, opportunities for social networking, and more. But how should consumer genomics be regulated? Join us for a panel discussion with leaders at the forefront of consumer genomics (23andme and Navigenics), media commentators (Alexis Madrigal from Wired), and policy makers.”
The moderator of the discussion was Hank Greely, a professor at Stanford whose work I highly respect and enjoy.
A recording of the panel discussion will be made available here at some point in the future.
Here is some additional info on the topic of security of customer data and what happens to when a company goes bust. It was written by our genetic counselor at AccessDNA:
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