[This is a repost of an article that appeared on May 26, 2007. Since Iâ€™m knee-deep in final projects and exams, I thought Iâ€™d pull out a popular article from the archives. I hope you enjoy it (again)]:
In Part I and Part II of the â€œYou and the $1000 Genomeâ€ series we examined the history of the Archon X PRIZE for Genomics and the success of the International HapMap Project. Today weâ€™ll talk about some of the ethical issues associated with efficient and inexpensive genome sequencing. The value of whole genome sequencing will only be realized if individuals believe they have complete and legal control over their genetic information. I am greatly indebted to a thorough analysis of this issue by John A. Robertson at the University of Texas School of Law (â€The $1000 Genome: Ethical and Legal Issues in Whole Genome Sequencing of Individuals (pdf).â€ 2003 The American Journal of Bioethics 3(3):InFocus). Note that this analysis is not intended to constitute answers to any of the ethical questions – it is only meant to be part of the discourse.